Useful organisations

All organisations are UK wide unless otherwise stated.

AFASIC: Association for All Speech Impaired Children
2nd Floor, 50 – 52 Great Sutton Street, London, EC1V 0DJ

Helpline: 0845 3 55 55 77
Website: Represents children and young adults with communication impairments. They work for their inclusion in society and support parents and carers. They have websites for all UK countries, which are accessible through the above website.

All about ABI: Acquired Brain Injury

The Brain and Spine Foundation

3.31 Canterbury Court, Kennington Park, 1-3 Brixton Road, London SW9 6DE Helpline: 0808 808 1000
Has lots of online information for children and teenagers affected by an acquired brain injury. They provide advice on returning to school, participating in sports, sex and other related topics.

Child Stroke Support Site

This website has been set up for parents of children who have had stroke or AVMs. It is a good place to access information and emotional support.

Children’s Brain Injury Trust

Unit 1, The Great Barn, Baynards Green Farm, Nr Bicester, Oxfordshire, OX27 7SG. Helpline: 0845 601 4939

Supports anyone affected by childhood acquired brain injury, from the child or young person to his or her family and professionals. They provide information, grants and emotional support.

Contact a Family

209-211 City Road, London, EC1V 1JN. Helpline: 0808 808 3555
Provides support and advice to the parents of disabled children. They have community services, grant and benefit information and publications.

Different Strokes

9 Canon Harnett Court, Wolverton Mill, Milton Keynes, MK12 5NF
Helpline: 0845 130 7172
Offers a children’s information pack and an online forum for parents to talk to each other.

Disabled Living Foundation

380 – 384 Harrow Road, London, W9 2HU Helpline: 0845 130 9177
Provides advice on child-friendly daily living equipment including information on mobility, development and play, and household aids and adaptations.

Great Ormond Street Hospital for Children
Great Ormond Street, London, WC1N 3JH Telephone: 020 7405 9200

Website: Provides information and advice on childhood stroke, associated risk factors and tips on how to cope.


6, Market Road, London, N7 9PW Helpline: 0845 123 2372

Provides information and support to children and families affected by hemiplegia. They have activity groups, support groups for parents and siblings, and advice on aids and equipment.


Meadowfield, Oxenhope, West Yorkshire, BD22 9JD Telephone: 01535 645453 Website:
Supports siblings of disabled children and adults.

Sickle Cell and Young Stroke Survival

8th Floor, Hannibal House, Elephant and Castle, London, SE1 6TE
Helpline: 08000 842 809

Provides advice and support, counselling for children and parents, group support, talks and clubs.

Study of Outcome in Childhood Stroke

Level 6 UBHT Education Centre, Upper Bristol, BS2 8AE. Tel: 0117 342 0176 Website:
Research project aiming to find out what impact stroke has on a child’s health and development. The website lists medical guidelines and information for professionals and families.

Young Carers: The Princess Royal Trust for Carers
Unit 14, Bourne Court , Southend Road, Woodford Green, Essex IG8 8HD
Tel: 0844 800 4361 Website: This organisation supports younger carers. They have information, groups and online forums to talk to other people in a similar situation.


2nd Floor Offices, Lyric Buildings
King Street, Carmarthen, SA31 1BD
Tel: 01267 244 200
Provides information, a grant scheme, benefits advice, and a counselling helpline for parents with disabled chiildren. Has a sleep support network and an innovation centre for aids and adaptations and a recycling service for aids that have been outgrown.